I'm Aware That I'm Rare: the phaware® podcast

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I'm Aware That I'm Rare: the phaware® podcast

I'm Aware That I'm Rare: the phaware® podcast

Höfundur: phaware global association

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from me...

EN Bandaríkin Samfélag

Nýlegir þættir

1117 þættir
Jennifer Keeley, DPN and Mary Whittenhall, MSN - phaware® interview 550

Jennifer Keeley, DPN and Mary Whittenhall, MSN - phaware® interview 550

Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patie...

2025-12-10 16:00:00 Lengd óþekkt
Sækja
Episode 550 - Jennifer Keeley, DPN and Mary Whittenhall, MSN

Episode 550 - Jennifer Keeley, DPN and Mary Whittenhall, MSN

Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patie...

2025-12-09 15:25:00 29:41
Sækja
Ashlee Gambino - phaware® interview 549

Ashlee Gambino - phaware® interview 549

My name is Ashlee "The Mobwife" Gambino. I'm a retired professional fighter. I've acted. I've done a lot of different things. I am now diagnosed with...

2025-12-03 16:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 549 - Ashlee Gambino

Episode 549 - Ashlee Gambino

FIGHTER TO SURVIVOR: ASHLEE GAMBINO'S BATTLE BEYOND THE RING

In this gripping episode, Ashlee "The Mobwife" Gambino shares her journey...

2025-12-01 18:45:00 12:24
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Sophia Esteves - phaware® interview 548

Sophia Esteves - phaware® interview 548

Scars and Survival: Rebuilding Life After a Devastating Diagnosis

After countless hospital stays, new medications, and near-breaking po...

2025-11-26 16:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 548 - Sophia Esteves

Episode 548 - Sophia Esteves

Scars and Survival: Rebuilding Life After a Devastating Diagnosis

After countless hospital stays, new medications, and near-breaking po...

2025-11-25 15:05:00 13:05
Sækja
Richard Channick, MD - phaware® interview 547

Richard Channick, MD - phaware® interview 547

The Silent Rise of Chronic Pulmonary Embolism and the Tech That's Changing Everything

From portable ECMO to catheter breakthroughs, the...

2025-11-19 16:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 547 - Richard Channick, MD

Episode 547 - Richard Channick, MD

The Silent Rise of Chronic Pulmonary Embolism and the Tech That's Changing Everything

From portable ECMO to catheter breakthroughs, the...

2025-11-18 16:00:00 08:22
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Jenny Yang, MD - phaware® interview 546

Jenny Yang, MD - phaware® interview 546

The One Type of PH You Can Actually Cure

Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary...

2025-11-12 16:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 546 - Jenny Yang, MD

Episode 546 - Jenny Yang, MD

The One Type of PH You Can Actually Cure

Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary...

2025-11-11 16:00:00 13:10
Sækja
Victor Test, MD - phaware® interview 545

Victor Test, MD - phaware® interview 545

The Diagnosis Delay That's Still Hurting Patients

Despite better tools and more awareness, people with PH are still being diagnosed too...

2025-11-05 16:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 545 - Victor Test, MD

Episode 545 - Victor Test, MD

The Diagnosis Delay That's Still Hurting Patients

Despite better tools and more awareness, people with PH are still being diagnosed too...

2025-11-04 15:39:41 05:58
Sækja
LaRae Hacker - phaware® interview 544

LaRae Hacker - phaware® interview 544

How TBX4Life Is Fueling a Global Collaboration

LaRae Hacker never set out to become a rare disease advocate—but when her daughter's TBX4...

2025-10-29 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 544 - LaRae Hacker

Episode 544 - LaRae Hacker

How TBX4Life Is Fueling a Global Collaboration

LaRae Hacker never set out to become a rare disease advocate—but when her daughter's TBX4...

2025-10-28 14:48:54 09:05
Sækja
Anthony Carrasco - phaware® interview 543

Anthony Carrasco - phaware® interview 543

How I Survived Meth Addiction, Lung Failure, and Found Purpose

Anthony Carrasco was a meth addict by 15, and nearly dead by 35. Diagnose...

2025-10-22 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 543 - Anthony Carrasco

Episode 543 - Anthony Carrasco

How I Survived Meth Addiction, Lung Failure, and Found Purpose

Anthony Carrasco was a meth addict by 15, and nearly dead by 35. Diagnose...

2025-10-21 13:29:36 15:28
Sækja
Brandon Jakubowski, MD - phaware® interview 542

Brandon Jakubowski, MD - phaware® interview 542

Treating Meth-Associated PAH Without Judgment

Dr. Brandon Jakubowski takes us into the underrecognized world of stimulant-induced pulmon...

2025-10-15 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 542 - Brandon Jakubowski, MD

Episode 542 - Brandon Jakubowski, MD

Treating Meth-Associated PAH Without Judgment

Dr. Brandon Jakubowski takes us into the underrecognized world of stimulant-induced pulmon...

2025-10-14 15:00:00 11:57
Sækja
Nicholas Kolaitis, MD - phaware® interview 541

Nicholas Kolaitis, MD - phaware® interview 541

The Face of Addiction Isn't Who You Think It Is

Once thought to be a West Coast issue, methamphetamine-associated pulmonary hypertension...

2025-10-08 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 541 - Nicholas Kolaitis, MD

Episode 541 - Nicholas Kolaitis, MD

The Face of Addiction Isn't Who You Think It Is

Once thought to be a West Coast issue, methamphetamine-associated pulmonary hypertension...

2025-10-07 15:00:00 14:45
Sækja
Peter J. Leary, MD - phaware® interview 540

Peter J. Leary, MD - phaware® interview 540

How Stigma Blocks Meth-PAH Treatment and How to Stop It

Patients with methamphetamine-associated-PAH often arrive at clinics already car...

2025-10-01 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 540 - Peter J. Leary, MD

Episode 540 - Peter J. Leary, MD

How Stigma Blocks Meth-PAH Treatment and How to Stop It

Patients with methamphetamine-associated-PAH often arrive at clinics already car...

2025-09-30 15:00:00 18:27
Sækja
Vinicio de Jesus Perez, MD - phaware® interview 539

Vinicio de Jesus Perez, MD - phaware® interview 539

The Hidden Epidemic: Meth and PH
Meth-Associated PAH is on the rise across the United States, yet many patients are not receiving the treatment...

2025-09-24 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 539 - Vinicio de Jesus Perez, MD

Episode 539 - Vinicio de Jesus Perez, MD

The Hidden Epidemic: Meth and PH
Meth-Associated PAH is on the rise across the United States, yet many patients are not receiving the treatment...

2025-09-23 15:00:00 21:18
Sækja
John Kingrey, MD - phaware® interview 538

John Kingrey, MD - phaware® interview 538

Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconc...

2025-09-17 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 538 - John Kingrey, MD

Episode 538 - John Kingrey, MD

Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconc...

2025-09-16 15:00:00 15:45
Sækja
Kari Gillmeyer, MD, MSC - phaware® interview 537

Kari Gillmeyer, MD, MSC - phaware® interview 537

Delays in diagnosing and treating pulmonary hypertension (PH) can have life-altering consequences. In this episode, Dr. Kari Gillmeyer, discusses her...

2025-09-10 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 537 - Kari Gillmeyer, MD, MSC

Episode 537 - Kari Gillmeyer, MD, MSC

Delays in diagnosing and treating pulmonary hypertension (PH) can have life-altering consequences. In this episode, Dr. Kari Gillmeyer, discusses her...

2025-09-09 15:00:00 13:08
Sækja
Eric Borstein - phaware® interview 536

Eric Borstein - phaware® interview 536

A 200 Mile Journey from LA to San Diego to Raise Awareness for PH

When Eric Borstein collapsed in his bedroom in 2020, doctors gave him...

2025-09-03 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 536 - Eric Borstein

Episode 536 - Eric Borstein

A 200 Mile Journey from LA to San Diego to Raise Awareness for PH

When Eric Borstein collapsed in his bedroom in 2020, doctors gave him...

2025-09-02 15:00:00 23:26
Sækja
Akshay Muralidhar, MD - phaware® interview 535

Akshay Muralidhar, MD - phaware® interview 535

Dr. Akshay Muralidhar, Co-Director of the Pulmonary Hypertension Center of Excellence at Arizona Pulmonary Specialist in Phoenix, discusses the import...

2025-08-27 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 535 - Akshay Muralidhar, MD

Episode 535 - Akshay Muralidhar, MD

In this episode, Dr. Akshay Muralidhar, Co-Director of the Pulmonary Hypertension Center of Excellence at Arizona Pulmonary Specialist in Phoenix, dis...

2025-08-26 15:00:00 13:52
Sækja
Raj Parikh, MD, MPH - phaware® interview 534

Raj Parikh, MD, MPH - phaware® interview 534

Dr. Raj Parikh from Hartford Hospital discusses building on foundational pathways with treatment options for Pulmonary Arterial Hypertension (PAH) pat...

2025-08-20 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 534 - Raj Parikh, MD, MPH

Episode 534 - Raj Parikh, MD, MPH

Dr. Raj Parikh from Hartford Hospital discusses building on foundational pathways with treatment options for Pulmonary Arterial Hypertension (PAH) pat...

2025-08-19 14:35:26 14:46
Sækja
Robert Frantz, MD - phaware® interview 533

Robert Frantz, MD - phaware® interview 533

Dr. Robert Frantz breaks down the key metrics behind risk stratification—functional class, six-minute walk distance, and brain natriuretic peptide lev...

2025-08-13 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 533 - Robert Frantz, MD

Episode 533 - Robert Frantz, MD

Dr. Robert Frantz breaks down the key metrics behind risk stratification—functional class, six-minute walk distance, and brain natriuretic peptide lev...

2025-08-12 15:00:00 17:20
Sækja
Jean M Elwing, MD - phaware® interview 532

Jean M Elwing, MD - phaware® interview 532

ICU & You: What Happens When Pulmonary Hypertension Turns Critical?

Pulmonary hypertension is already a complex condition, but what happ...

2025-08-06 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 532 - Jean M Elwing, MD

Episode 532 - Jean M Elwing, MD

ICU & You: What Happens When Pulmonary Hypertension Turns Critical?

Pulmonary hypertension is already a complex condition, but what happ...

2025-08-05 14:50:55 12:06
Sækja
John Granton, MD - phaware® interview 531

John Granton, MD - phaware® interview 531

Dr. John Granton, a critical care and transplant physician at Toronto General Hospital, shares his journey in pulmonary hypertension and lung transpla...

2025-07-30 15:00:00 Lengd óþekkt
Engin hljóðskrá
Episode 531 - John Granton, MD

Episode 531 - John Granton, MD

Dr. John Granton, a critical care and transplant physician at Toronto General Hospital, shares his journey in pulmonary hypertension and lung transpla...

2025-07-29 14:55:47 10:33
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